January 16, 2006

Bladder Cancer Sisterhood




     Hello, I would like to welcome you to the BCSisterhood.  I am bladder cancer survivor and because of it being stage III and invasive by the time it was diagnosed, my bladder was removed and I had to undergo a radical hysterectomy.   I have an Indiana pouch.  I consider myself very lucky to be alive almost 10 years later.  I have been working on awareness and advocacy for several years.  One thing I have discovered, as I am sure many of you have also, is that there is little out there directed to the support for women who have bladder cancer.  There is little research that is directed to bladder cancer.  The awareness of this cancer as it relates to women is very limited.  Far too many doctors do not test women for bladder cancer even when they have all the symptoms and are in one of the risk groups.  I hope this blog will be a way that we can unite and change that.  If we bond together, speak out in a unified voice, we may begin to be heard.  As least we can begin to make a difference for those that follow us.  I hope that you will submit your pictures and your stories.  It will help others to know they are not alone.  They need you, and we need each other. 
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